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Difficult Words

Anomaly. Birth defect. Disability.

These words are difficult to hear at any point, but as a new parent, they are exceptionally hard to swallow.

In the past few days, Misty and I have heard those words and lots more.

Shortly after Isabella was born, we noticed that one of her eyes looked different than what we remembered when Noah was a baby. The next four hours had to have been some of the worst I have ever experienced. Doctors of all kinds converged on the hospital to look at Isabella. It was a very scary time. We had no idea what was going on and the doctors didn't want to say anything to us until they knew what was going on either. After rounds of examinations two doctors and a nurse practitioner came in to talk to us. The only thing that I could say as they walked into the room was "I'm looking for good news, doc."

The doctors sat down and began to speak and my heart fell as I heard the words. Her left eye, the eye that I had initially questioned the nurse about, is not properly formed. It is slightly smaller than it should be and the iris is cloudy. Her right eye, which she had not opened yet, is basically non-existant. The name of the condition in her right eye is Peter's Syndrome and the left eye is microphthalmia.

So what does it all mean? It means we have a beautiful baby girl with a challenge. It also means that there will be lots more doctors and tests. Beyond that, I can't tell you much more. I promise that there will be lots more updates and information up here as we know more.

Comments

Well I have been told several times that our God gives us only what we can do successfully in a lifetime. I have challenged that thinking more than once, but I have found that to be true. Hard to believe and understand, but when we look at the sky at night watch the sunset in the evening and the sunrise in the morning and see our children embrace another day as it is their first.
Isabella has entered into this life with the best grandparents, aunts, uncles, cousins and extended family any child could hope for. God bless all of you!!

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