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Tests, Test & More Tests

Isabella is five days old and in that time, she has had so many tests and seen so many doctors that it makes my head spin.

So far, she has seen two pediatricians, two neonatologists and a pediatric opthamologist. She has also had a CT Scan, an MRI, an echocardiogram, a sonogram, her eye dilated and looked at and the start of some genetic testing.

All in all, it makes for a long five days.

So far, here is what we know... As I mentioned before, her left eye has a cloudy retina and a possible cataract. She also has a separation in the iris of her eye that is known as Coloboma. This is a variant of something called Peter's Syndrome. Her right eye is virtually non-existent. We have been told that it is about 3mm in diameter. This is called microphthalmia. Right now, we are not sure of the vision potential in the left eye, but we do know that she can see light out of it. As for the right eye, that is up in the air. The opthamologist has said that she has a patient that has a similar eye and he can see color and shapes out of it, so there is some hope.

The only other thing that came out of all the tests, and it sounds much scarier than it really is, was that they found a small hole in her heart. Before they are born, all babies have a hole between two chambers of their hearts that allow blood flow to bypass the lungs. This is because the blood doesn't have to make a trip to the lungs to be oxygenated. This hole can fail to close in some babies until after birth. The pediatrician told us that this is completely normal, although it does sound bad. There are no other signs of issues with this and if she hadn't had an echocardiogram, we would have never known that it was there.

Tomorrow we are heading to Iowa Eye Prosthetics to have Isabella fitted for her first conformer. We will drive down tomorrow and get her fitted on Friday and then come home after that. We have asked around and it looks like they will allow us to take pictures as they do the procedure, so I'll get them up here as soon as possible.

More to come...

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