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June 12, 2006

A Bump in the Road

In this journey that we are on, even the smallest bump in the road can feel unsurmountable.

Today, Isabella had a pretty extensive examination. They did the exam under anesthesia and, while he was in there, Dr. Goins was going to remove any stitches that needed to be taken out. We went to the hospital at 6:30 and they took her back to the operating room at 8:00. After about 45 minutes, Dr. Goins came out to the waiting room to fill us in on the details.

First of all, he is very happy about the health of the graft. He said that it was crystal clear and that she is healing very quickly. Based on the progression of the healing, he decided to take out all of the stitches that were in there.

Secondly, her occular pressure was fantastic. One of the biggest complications with Peter's Anomaly is glaucoma and so far, Isabella is far below the threshold before they start worrying about that.

The last bit of news was the bump... When Dr. Goins did the transplant, he also did a lensectomy and removed the lens capsule to resolve the cateract. In Isabella's case, she has started to regrow some lens material and other membrane behind the iris. This has reduced the size of her pupal opening from 5mm right after the transplant to 1mm - 2mm currently. Dr. Goins was surprised that this has occured, but said that it wasn't completely uncommon with infants. The good news is that this is repairable. The bad news is that it is going to require two more anesthesia trips. One to do the actual surgery and one to remove the stitches from that surgery.

So, overall, the news was mostly good. Just a small bump in the road.

More to come soon... Pictures too.

June 07, 2006

A Little Information

With a little information about where to start looking, some persistence and a little luck, you can pretty much figure out anything. The question is, when you do manage to dig up what you are looking for, what do you do with it?

In the case of a transplant, the recipient is given a very small amount of information about the donor. For some people, what they give you is more than enough and they want to continue to live in anonymity. I can understand that, but I wanted to know more. Without crossing any lines, I wanted to find out as much as I could. I wasn't able to find much about the donor, but what I was able to find gave me tremendous insight into his life.

I'm not sure all of this information should be available for public consumption, but I'd like to the donor of Isabella's cornea to know that I'm going to drink a beer in his honor on his birthday and on the anniversary of his donation.

Knowing what I do know, I'm sure he will appreciate that.

More to come soon...